Seguendo questo link salti il contenuto della pagina e vai direttamente alla Mappa del sito a fondo pagina
(IT) EN
   Responsabile: Domenica Taruscio
Sei in:
Progetti e attività Internazionali

EUROPLAN Project



The European Project for Rare Diseases National Plans Development (EUROPLAN) is a three-year project of the Programme of Community action in the field of Public Health (2003 - 2008), which began in April 2008.

EUROPLAN is coordinated by the Italian National Center of Rare Diseases (ISS) and includes 33 countries and Eurordis (the European Organisation for rare diseases).

The main goal is to develop recommendations on how to define a strategic plan for rare diseases. The recommendations will provide information on the different steps to develop a strategic plan and, more important, it will include priority areas and actions of intervention in the field of rare diseases.

The project will collect and disseminate information on EU MS national initiatives on rare diseases, on expectations on national plans for rare diseases and on best practices contributing to share experiences, data and effective strategies to address rare diseases.

This will ensure a broad representation of different EU context and experiences and patients’ point of view. In addition, the project will ensure an inclusive and wide engagement of stakeholders - Ministries, regional and local authorities, health care planners, programme managers, health care professionals, researchers and patients.

The expected outputs of EUROPLAN are:

  • To stimulate a discussion and reach a consensus on the importance of national plans for structuring all relevant actions in the filed of rare diseases
  • To identify priority areas and actions of intervention for addressing rare diseases
  • To promote the development of national plans for rare diseases within EU MS providing an instrument to support Countries in designing national plans for rare diseases




Pubblicato il 26-10-2014 in Progetti e attività Internazionali , aggiornato al 03-11-2014

Condividi: 

Note legali


© - Istituto Superiore di Sanità Viale Regina Elena 299 - 00161 - Roma (I)
Partita I.V.A. 03657731000 - C.F. 80211730587 - Note legali

ISS Home

Informiamo i visitatori, in virtù della individuazione delle modalità semplificate per l'informativa e l'acquisizione del consenso per l'uso dei cookie - 8 maggio 2014 (Pubblicato sulla Gazzetta Ufficiale n. 126 del 3 giugno 2014), che questo sito utilizza direttamente solo cookie tecnici.[Ho letto]