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Rare diseases toll free number

METHODOLOGY AND INSTRUMENTS

Methodology

Counseling is the methodology adopted by TVMR researchers.
The aim of phone counseling is to support discomforted citizens anonymously if requested, addressing them to specialized structures, if possible located in their area of residence, both for treatment (centres identified by the Regions) and for support (patients’ Associations).
Counseling is a process that helps people solving and managing problems and make decisions through dialogue and interaction. It involves a user and a counsellor: the first one is a subject needing help, the second one is an experienced, impartial individual, not related with user, trained to listen and able to provide support and guidance.


The instruments

A computerised system allows to search online required information and to gather and file all data in short time, thanks to the data entry functions.

Published 20-05-2008 in Rare diseases toll free number , last update 22-05-2008

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