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National Center for Rare Diseases

ISS : CNMR : FAQ

Domenica Taruscio

Istituto Superiore di Sanità
Via Giano della Bella, 34
00161 - Roma (I)
Phone: 06 4990 4017
Fax: 06 4990 4370
taruscio@iss.it

FAQ

The most frequently asked questions to the National Rare Diseases Center are about receiving information regarding diseases exempt from patient contribution, accredited presidia, patients associations, etc.

ASSOCIATIONS - Are there Associations dealing with my disease?

ASSOCIATIONS - How can I find people living the same experience as mine?

ASSOCIATIONS - What an association should do to be listed in the National Centre for Rare Diseases's database?

2 Documents

EXEMPTION - How can I find the exemption code number for my disease?

EXEMPTION - What kind of administrative procedure should I follow to require the inclusion of my pathology among those protected by the D.M. 279/2001?

EXEMPTION- Is my disease exempt from contribution?

FOLIC ACID - I would like to have a baby, when should I take folic acid?

PMA - Where can I find information about the centers for MAP (Medically Assisted Procreation)?

REGIONS - How can I find accredited centres for my pathology in my Region or in other Regions?

REGIONS - Where can I find health information in my Region?

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