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   Person in charge: Domenica Taruscio
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National Centre for Rare Diseases

 The National Rare Diseases Centre (CNMR), directed by Dr. Domenica Taruscio, is part of the National Rare Diseases Network. The Centre carries out scientific research and public health activities, both at national and international level.

The National Rare Diseases and Orphan Drugs Registers
The National Rare Diseases Register identifies the number of cases and their distribution on the national territory, being the central connection of the national clinical-epidemiological network. The National Orphan Drug Network aims at activating a surveillance system for all orphan drugs reimbursed by the National Health System. For further information, visit the specific sections of the National Rare Diseases Network and of the National Orphan Drugs...

Published 03-20-2008 in About us , last update 06-18-2008 More...

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The workgroup

 Under contruction

Published 03-20-2008 in About us , last update 06-18-2008 More...

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Contacts

 NATIONAL CENTRE FOR RARE DESEASES
VIA GIANO DELLA BELLA, 34
00161 - ROMA (I)


Secretariat
Phone nr. 06 4990 40 17
Fax 06 4990 43 70
malattierare@iss.it


Rare diseases toll free number
800.89.69.49
The service is available from Monday to Friday, from 9,00 am to 1,00 pm.

Web support service
webcnmr@iss.it


Published 03-20-2008 in About us , last update 06-20-2008 More...

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Legal information


© - Istituto Superiore di Sanità Viale Regina Elena 299 - 00161 - Roma (I)
Partita I.V.A. 03657731000 - C.F. 80211730587 - Legal information

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