National Center for Rare Diseases
Domenica Taruscio
Istituto Superiore di Sanità
Via Giano della Bella, 34
00161 - Roma (I)
Phone: 06 4990 4017
Fax: 06 4990 4370
taruscio@iss.it
23rd - 24th February 2012 - Workshop "Clinical practice guidelines on rare diseases"
CNMR-ISS is organizing a workshop aimed at sharing experiences and knowledge on methodological issues concerning the development of clinical practice recommendations on rare diseases.
Role of clinical practice guidelines on rare diseases in informing and shaping organization of care models within a health care system will be also debated.
The workshop gathers participants from experienced organizations and institutions in systematic reviews and guidelines production as well as patients associations and policy makers at national and European level.
The workshop will take place in Rome, Istituto Superiore di Sanità on 23rd -24th February 2012.
