Back Volume 37, no. 3-4, March-April 2024. Citizen science to improve the quality of life of people with rare diseases. 900's scientist Filomena Nitti, which has still got influence over at the ISS - the National Institute of Health in Italy - to this day. How widespread is the use of tobacco and nicotine products among 13-15 year old school students in Italy? The contribution of Global Youth Tobacco Survey - GYTS – data. RarISS Insert. Giovanni Battista Morgagni and the birth of anatomy pathological


 

Abstracts:

Citizen science to improve the quality of life of people with rare diseases
Rare diseases are a large group of disorders, defined by their low prevalence in the population: while heterogeneous, they share diagnostic difficulties, clinical complexity, chronic and disabling outcomes and a high family and social burden. It is therefore a priority to promote scientific research to identify new diagnostic tools and effective treatments; furthermore, it is important to promote projects and initiatives aimed at the daily psychophysical well-being of the person. Inspired to Citizen Science, we started the project "Participatory science for improving the quality of life of people with rare diseases", coordinated by the CNMR of the Istituto Superiore di Sanità (the Italian National Institute of Health in Italy, ISS), within a broader collaboration agreement between the ISS and the Ministry of Health.

900's scientist Filomena Nitti, which has still got influence over at the ISS - the National Institute of Health in Italy - to this day
On January 22, 2024 a volume dedicated to Filomena Nitti, a researcher at the ISS from 1947 to 1964, was presented at the ISS Museum. The volume traces her professional and personal life, highlighting her commitment to scientific research and to the welfare of workers. Filomena Nitti's life was characterized by a true dedication to research, love for her own family, and concern for workers' well-being, with a deep love for democracy and for her country. Despite the importance of her work, she never received any scientific recognition. The book presentation was coordinated by Enrico Alleva and Antonio Mistretta, with the participation of the authors. After the publication of the book, ISS also named the Bovet lecture hall after Filomena Nitti, in tribute to the female scientists who did not receive due recognition in the research field.

How widespread is the use of tobacco and nicotine products among 13-15 year old school students in Italy? The contribution of Global Youth Tobacco Survey - GYTS - data
The fourth edition of the Global Youth Tobacco Survey (Gyts) detects the growing use of 'alternative' devices to traditional cigarettes, such as electronic cigarettes (e-cigs) or heated tobacco devices (HTPs). In Italy, one in four students aged between 13-15 has used a product including cigarettes, e-cigs and HTP at least once in the last month, and almost one in three has smoked a 'traditional' cigarette at least once in a lifetime. For the first time, greater use emerges among girls compared to their male peers for all the products considered. The survey recorded still insufficient compliance with the smoking ban in schools.