National Center for Rare Diseases
What are Rare Diseases?
A disease is considered rare when it affects 1 individual among 2 thousands persons. There are from 5 thousands to 8 thousands different pathologies that only in Europe affect more than 15 million inhabitants.
Rare Diseases exempt from contribution in Italy
Ordered list of pathologies and online search.
I have a Rare Disease?
What do I have to do?
There are several steps to be followed to understand the world of rare diseases: from the diagnosis to the care centres and the Associations of patients.
July 8-12, 2013
Summer School "Clinical practice guidelines on rare diseases" - new deadline for application submission -
23 November 2012
Public consultation
on the implementation of European Reference Networks (ERN)
Rome, 8-9 October, 2012
International Workshop
RARE DISEASE AND ORPHAN DRUG REGISTRIES
CALL FOR ABSTRACTS - New deadline: August 16, 2012
16-20 September 2013
International Summer School "Rare Disease and orphan drug registries"
July 9-11, 2012
Summer School Clinical practice guidelines on rare diseases
May 24 - EUROPLAN CONFERENCE
May 30 - EURORDIS MEMBERSHIP MEETING DUBROVNIK 2013
June 07 - 4TH I-DSD SYMPOSIUM
June 14 - 12th EUROPEAN SYMPOSIUM ON CONGENITAL ANOMALIES
June 22 - 5TH INTERNATIONAL CONFERENCE ON CHILDREN'S BONE HEALTH
July 17 - 8TH INTERNATIONAL PRADER-WILLI SYNDROME CONFERENCE
September 13 - 3RD INTERNATIONAL CONGRESS MAGENTA OSTEOAREA
